Because no family should have to face Heterotaxy alone.
Every movement begins with a story. Our Co-founder, Necia Sabin, wants to show you why this one matters so deeply.
Necia’s story sparked a community of hope, connection, and change.
When Necia’s family first began their Heterotaxy journey, she had no idea how many others were walking a similar path, how many families were feeling isolated, searching for answers, and trying to make sense of a diagnosis few had ever heard of. What began as her personal search for understanding has grown into a global network of families and professionals determined to make a difference together.
Heterotaxy Connection was born from that shared need for information, advocacy, and belonging. Every monthly donor helps keep that promise alive, the promise that no family will ever have to navigate the Heterotaxy journey alone.
We invite you to hear Necia’s story and see why your support means so much.
